I didn’t write my memoir to get rich or famous although I’d hoped for success. I bared my soul in Misdiagnosed: The Search For Dr. House so that others might know the frustration and fear of not knowing what’s wrong with you, the relief of finding the answer and the pain, loneliness and triumphs of living with a chronic illness. Others are now hearing my message and understanding the struggle; that’s a great accomplishment.
New Amazon Customer Review
5.0 out of 5 stars
Journey for a diagnosis
ByPamela S. Waymanon October 13, 2017
Format: Kindle Edition
This book is very interesting. A must read if you have had a medical mystery disease. Nika is slowly deteriorating and spends much time and money looking for a cure or at least a diagnosis of her illness.
Author Napolean Hill says “A goal is a dream with a deadline.” I believe that’s true. Instead of saying someday I will, I’ve decided to set goals to reach for the next 90 days. Why? The alternative would allow my fear of relapse to keep me from moving my life forward. And, it would enable the fact that I have an autoimmune disease (igg4-rd)to limit my future. No way!
1. Set a publication date for my book, Chronic (formerly named Healed) in March (Autoimmune awareness month). I’ve submitted to publishers and gotten notes that ‘memoirs by people who aren’t famous don’t sell. Even one copy is a victory to me. I will release it so that all people who live with an autoimmune disease, relapsing disease or chronic illness/pain will know that it is possible cope with a medical ailment that cannot be cured.
2. Register for a course to complete another degree I started a long time ago (pave the way for a new career as a teacher/professor or whatever I chose). I’m certain not to old to learn. I read and share newly acquired knowledge every day at my present job.
3. Plan a trip that’s more tha a week long with my family (time is precious and want to spend it with those I love.)
4. Begin the adoption application process (I’ve always wanted to be a mom and this maybe the only way for me to do so)
5. I’ll stand on my own two feet and take a long walk without the assistance of a cane for the first time in two years. January 15th is the end of my chosen 90 day period. All of my restorative procedure will be complete.
When I finished my list the lyrics to one of my favorite songs from the musical, “Rent,” popped into my head:
“There’s only now, there’s only here
Give in to love or live in fear
No other path, No other way
No day but today”
There is no way I can justify not accomplishing my goals. I prayed for this respite for decades. I had procedures, saw doctors, and took pills to get to this point. I fought for the chance to succeed, to thrive, to live my dreams. And, I will. No Excuses.
Facebook reminded that four years ago today the chronic lymphadenopathy caused by my autoimmune disease led to my six surgical lymph node biopsies. This was my final one so far. It left me with a permanently crooked smile but I’m alive.
Three years ago (on the top left) I had my stomach rebuilt and my esophagus repaired for the second time. Chronic inflammation and the drugs I take to manage my chronic pain and illness destroyed them but saved my liver, my ovaries and prevent another stroke. I eat differently but I can swallow; that’s a gift.
Two years ago, my pain in my spine made it hard to walk and caused persistent headaches. Osteoarthritis in my knee from chronic inflammation hurt me too. So, I got radio frequency ablation to scar the nerves and kill the pain. I got a cane for stability and injections in my knees.
The bottom right is me now. Functioning is still sometimes a struggle but I’m not where I was and that’s a blessing. I don’t know what’s next but I know that with faith, friends, family and fortitude I will continue to move forward. And I will share what I’ve learned along the way to help others to keep fighting.I do it through my posts, blogs and memoir and now speaking in public too!
I raised $4,000 last Saturday for the Autoimmune Association for Related Diseases and delivered their keynote address at their NYC walk. I did it because no matter what name is given to your suffering everyone with one of these more than 10 conditions needs to lean on others like them so they don’t feel so alone and misunderstood.
#igg4 #disability #chronicpain #invisibleillness #chronicillness #biopsy #lymphoma #autoimmunedisease @autoimmunediseasesassociation @selenagomez @lenadunham @ladygaga @kimkardashian @halleberry @missymisdemeanorelliott
My praise for Alka-Seltzer cold and sinus and its ability to suppress my cold symptoms enough so I could speak at the Autoimmune Walk NYC 2017 wasn’t caught on camera but the majority of my speech is here:
I can only hope that as I continue to share what I’ve learned will motivate others to find a way to cope with whatever obstacles are in their path.
#invisibleillness #autoimmunedisease #chronicillness #chronicpain Autoimmune Walk #disability #spoonie