I’m her first born, her baby girl, her only daughter and I am the sickly one. My twenties and thirties were a disaster. The autoimmune condition that frequently tortures me nearly claimed my life on several occasions. Each time, my mother rushed to my side and nursed me back to health. I felt guilty. I thought I was a burden. But to her, she was simply being a mother to me; a job that would never end.
Thankfully, over the last year my medical issues have lessened, giving mother and I the ability to just enjoy together. Recently, we chatted as we sat across from each other while eating a lunch after a morning volunteering together. We talked candidly about our relationship woes, difficulty with the children and our medical problems. No topic was off limits. No judgment was passed. We simply exchanged advice, observations and offered support like two girlfriends would do.
As we walked back towards my car, the lyrics to a song popped into my head:
“I’ll always love my mama
She’s my favorite girl
You only get one, you only get one, yeah
I’ll always love my mama
She brought me in this world”
I realized the woman beside me taught me how to be a caregiver, to give back, to be a good partner and to pray when all else fails. She wasn’t just my mother, she was and is my friend. She’s my M. F. F. (Mother and friend forever)
#mothersday #family #love #autoimmunedisease #caregiver #friends
From the moment I looked into his little eyes I loved him. I cherished his curiosity, innocence, playfulness and pure joy. The truth is I love my “stepson” in ways that are deeper than the affection I have for his father.
For nearly seven years, I’ve cared for his cuts and scrapes, done homework, changed sheets, done laundry, made breakfast, listened to stories and watched him grow. I’ve planned trips so I could show him the world and planned adventures so he could test his limits. I’ve been at his plays, concerts and religious rites of passage so he knows someone is always there for him. I’ve been proud of his accomplishments and tried to guide him through his failures and problems.
Of course, it’s not always easy being in the background or being constantly reminded that I’m not his biological mother. Yet, I try to remember that I care for him because when I met his father I decided I had to love him as if he were my own if my relationship was going to grow and flourish. Also, I always wanted to be a mother so being a stepparent, to me, was the next best thing. Even though I only get to do the job part-time, I cherish my time with this child who is now a young man.
I’m grateful to his mother for bringing this sensitive, generous human being into the world. I’m humbled she, and his father, let me have a hand in shaping him. I don’t expect cards, flowers or praise on Mother’s Day. I’ve already gotten a gift that fills my heart each and every day.
Happy Mother’s Day!
I bowed my head and prayed yesterday as I watched the votes roll in for the American Health Care Act. I wondered, how can elected leaders vote on a plan without knowing its impact, it’s total cost, or its benefits? How could they, in good conscience, believe that agreeing to something blindly is the right way to protect any American?
By the time my prayer was over, the tally was in and the measure passed in the House. I watched as President Trump heralded Republicans for a bill that will allow states to get a waiver to let insurers off the hook for covering people with pre-existing conditions. I wondered, how the same man who denounced discrimination just hours before could applaud a bill that is biased towards the chronically ill?
Before the vote, President Trump signed the Religious Freedom Bill. He said his administration wouldn’t allow people of faith to be targeted, bullied, silenced or discriminated against again. Was his outrage over oppression genuine? Or, is it reserved for people who shared the same income, values or political views?
Of course, the executive order the President signed relaxes the tax rules for religious organizations and the rules regarding punishing them for participating in political campaigns. Conservatives hope this will mean more money in their pockets and speaking opportunities. Meantime, the AHCA they support will take more money from the working poor, elderly and chronically ill Americans. Aren’t the people affected by the ACHA the same ones religious leaders should be striving to protect and help?
The ACHA will also defund Planned Parenthood, removing medical care options. Conservatives see this as a victory for family values and the right to life movement. But, who will care for sick children born to parents without healthcare? What kind of quality of life will they have without proper medical attention?
I can only assume the President has decided the sick will survive on faith if the AHCA passes in the Senate. Or, perhaps his administration is sending message that discrimination against the sick is okay if it’s good for his political clout.
#ACA #obamcare #healthcare #ACHA #trump #PresidentTrump #sick #discrimination #ChronicIllness #Autoimmunedisease #PlannedParenthood #ReligiousFreedom #ChronicPain #igg4
Why is my life not worth more than a vote to this administration? That’s the question I asked myself when I woke up to the news that an amendment has been added to the bill to repeal and replace the Affordable Care Act. The change doesn’t ensure people, like me, with pre-existing conditions will be able to keep or get health coverage.
The Amendment crafted by a Republican Congressman from my home state of New Jersey allows states to seek individual waivers. One could end continuous coverage and give insurance companies a year to write policies that consider a person’s medical status. Does anyone really think this won’t raise the cost of plans?
The amendment also doesn’t address what sick people are supposed to do while they wait for coverage. What happens to their bodies during that time?
American medical experts says sick people will get second class care if any at all. Why is it acceptable for chronically ill people to be forced to become second class citizens in their own country?
Earlier this week, more than 200 members of congress came together to reintroduce the Equality Act. It’s designed to protect LGBTQ rights; to stop discrimination against members of that community. Where’s the bill for the chronically ill?
When the Equality Act was proposed again, I heard passionate speeches about attacks by the Trump administration on the rights and values of Americans. Congressional leaders said action had to be taken to protect vulnerable citizens. Aren’t the sick, the weak and people suffering from mental or physical ailments in need of the most assistance and protection in this society?
Republicans are thrilled the new healthcare bill may pass in the house today. But I wonder, will their glee over a political victory be consolation to my parents and the loved ones of other sick people as they waste away from illnesses they can no longer get treated?
#paulryan #obamacare #Kimmel #Trump #PresidentTrump #Congress #ACA #ChronicIllness #AutoImmuneDisease #Igg4 #ChronicPain #RightToLife #Healthcare #healthcare reform
I may only have two days left before I am handed a death sentence. House Speaker Paul Ryan and President Trump are pushing a new healthcare bill that would lead to my death or bankruptcy. You see, I have a pre-existing condition. Without the protections from the Affordable Care Act, buying, obtaining or keeping health insurance will, once again, be nearly impossible for me. Why don’t I deserve the opportunity to fight for my life?
I’m not, nor have I ever, looked for others to pay my medical bills. In fact, in the last 14 years I’ve paid $168,000 out of pocket for my care; not to mention the lost wages from my job. Yet, I’ve held down a full-time job, paid my taxes and voted in elections. I’ve been a good American. Why should I, as a taxpayer, have to fight for medical coverage when it is given to the people who represent us in Congress?
I am being asked to choose between keeping myself alive or losing everything I’ve worked hard to maintain because I was born with a condition that has no cure. Why is my life so disposable? How can confessional leaders vote in favor of a plan that endangers their most vulnerable constituents?
I’m not sure whether those who are determined to repeal and replaced so-called Obamcare believe this is the right thing to do for all Americans. I think they’re using this measure to settle a political score. Should human life be treated like a political pawn or the previous gift that it is? Why Is no one considering my right to life?
I certain don’t believe those who penned the constitution, which guarantees the right to life, liberty and the pursuit of happiness, believed these rights were solely dependent on wealth. Clearly, our confessional leaders do. Without guarantees for pre-existing conditions will only the wealthy will survive medical trials? Is that the America they really want?
#paulryan #obamacare #Kimmel #Trump #PresidentTrump #Congress #ACA #ChronicIllness #AutoImmuneDisease #Igg4 #ChronicPain #RightToLife #Healthcare
Am I losing my humanity? That’s the question that went through my mind when my boss called a meeting in the newsroom and told us our co-worker, Mike Lynn, passed away. I felt numb when I thought I’d crumble.
Seconds later, my chest began feel heavy; it was weighed down by my sorrow but the tears didn’t come. My head hurt and I wasn’t thinking clearly but I knew there was no time to break down. I only had minutes until the 6 p.m. show. And, I still had work to do.
I tried not to think about the fact the Mike collapsed feet from where I was sitting. He too showed up for work today feeling under the weather but I was less than a half hour from going home while he wouldn’t.
Honestly, I didn’t see Mike often. He worked the overnight shift and I was on days. However, we were hardly strangers. His scripts were always filed in the rundown. I often used them as a base for my work in later shows. Whenever there was a snowstorm he worked late and I came in early. On those days, he’d stop to catch me up on his kids, office politics or current events. In recent years we became friends online. He’d like my posts, sometimes comment and occasionally send me a note in messenger to let me know he’d eaten some of my candy so he left me cash for some more.
It’s hard to believe that one of the most reliable co-workers I’ve had since the 90’s is no more. We are, or should I say we were, the last two full-time writers. Now I am alone and I don’t like it.
I will miss his wit, his humor, his intellect and his stories. This thought made me cry on the train ride home. I guess years of covering tragedy hasn’t stolen my humanity; I still feel the pain of losing another co-worker suddenly and far too soon.