Five years ago today, I could’ve died. I had the first of 6 surgical biopsies for suspicion of Lymphoma. But, I survived it and all the other side effects from my illness that couldn’t claimed my life, crippled me or left me incapacitated in some way.
Yet, it was because of my struggles with autoimmune disease I realized I wanted to live. It was then I learned a true friend is not someone who pays lip service to you by asking how you are or if you need something but is largely absent from your life without reason on a day like today. They’re the people who actually show up in mind, body and spirit by offering time, assisting with your needs and supporting you without enabling you. They may not understand the pain, complications or intricacies of your disease but they listen and empathize with you while encouraging you to keep fighting.
Today, as I gazed out at the Hudson River from Pier 45 I was surrounded by true friends and family who journeyed to support me at the Autoimmune Walk NYC. As a team we raised $4,000 for research. More importantly, we tested our bodies to walk and raise awareness about more than 100 illnesses.
As I stepped forward to address the crowd, I felt the sun hit my “no excuses” t-shirt. I was beaming with pride as I saw my loved ones wearing them too. They stood with me as I told their crowd their is no excuse for allowing yourself to die without doing everything in your power to get the answers you need to live your best life. There’s no excuse to only support causes focused on one autoimmune disease when we are all the same; human beings suffering from mysterious illnesses with root causes that could be the same. And, there’sno excuse for letting your illness limit you. You can do what you want by adjusting your thinking, accommodating your needs, and not accepting I can’t as the answer.
#aarda #friendship #coworkers #igg4 #spoonies #autoimmunedisease #invisible illness #chronicillness #chronicpain #disability #2018 #joythroughthepain #backpain #blogger #writinglife #kneepain #autoimmunewalknyc