9:45 am, I limped over to my desk and began working on coverage of President-Elect Trump for the second day in a row. By 12:30, I had turned two reporter packages and written and edited nearly a half dozen anchor voiceovers. Then, it was time to hop into a cab for one of my nearly weekly doctors’ appointment. This time, the specialist was at the Hospital for Special Surgery.
Years of chronic inflammation caused by the autoimmune disease igg4 related systemic disease had taken their toll on my knees, spine and hip, as well as several organs that have either been repaired, required biopsies or rely on some medication to deal with the damage. And, walking had become nearly impossible at one time but innovative treatments like burning the nerves, steroid injections, and knee injections, along with physical therapy and pain meds had just about restored me to my previous form with a cane.
After an hour at the doctor’s office, I was done and it was time to return to work to write about presidential politics and the rest of the news of the day. Chaos kept me from thinking about the policy change the President-Elect vows to make to so-called Obamacare kept me up on Tuesday night. For hours something my grandma Nettie used to say played in my head, “those who do not listen shall feel;” meaning people who don’t pay attention to what’s going on around them will suffer the consequences.
Had I or any other chronically ill person done enough to voice our outrage over plan to scrap so-called Obamacare? I hadn’t. The thought that I’d done nothing to make sure that a plan that preserves my independence is retained haunted me. So, as soon as I completed my last story I hit the keyboard again to draft a letter to my senators Booker and Menendez and Congressman Donald Payne, Jr. to see what can be done to preserve the portions of the Healthcare Act that have made it possible for me to live, work and thrive despite a sometimes debilitating autoimmune disease.
These thoughts played repeatedly in my head: I cannot go back to paying taxes in a society where, because of the ailment God gave me, I cannot buy health insurance. I cannot worry about getting cut off insurance if the treatment I need cost over a million dollars. Nor, can I go back to paying nearly every cent I earn on health care because there’s no cap on out-of-pocket expenses. I refused to be forced onto disability or into subpar health facilities because that’s the only way I’ll be able to survive without some of the terms of so-called Obamacare. And, the truth is that’s no life at all and not a life I want to live.
A flood of questions ran through my mind too like: If more competition, lower premiums and greater coverage is the aim of repealing the law that’s fine but does throwing out what does work make sense? Why not scrap this so-called Obamacare before another is ready to go? Does it make sense to leave millions of citizens in the lurch while you try to come up with something? Why hurt the very people trying to make America great by requiring less government services by standing on their own two feet? Why is the average American entitled to less medical care than senators, congressional leaders or the president and his family? More importantly, I wondered, why deny hardworking Americans the right to life in the name of politics? I deserve better so I will fight for it like I battle for my life every day. I’m not ready to die yet so I won’t let anyone take away my health care options easily. Will you?
Originally published in the Huffington Post: http://www.huffingtonpost.com/entry/5824a5fae4b0edfa13936169?timestamp=1478797289257