Worth The Ride

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Yesterday, I smiled hearing a friend’s story about Oktoberfest in Germany. I laughed walking to two former co-workers. I rejoiced over extra time with my fiancé. But I grimaced on the walk home from pain in my hip and lower back. When I got in bed, I saw a new 5 star review for my memoir: Misdiagnosed: The Search For Dr. House on Amazon. Lesson: life is full of high and lows but it’s worth the ride.

Here’s an excerpt:

“Beamon does a good job at describing the utter agony, frustration, and day-to-day struggle of her search for the answer. Misdiagnosed… is a great read and comes with great resources so that others will not fall victim to being misdiagnosed.”

 
Full review:
A guide for folks to find the right doctor.

ByJason L Huffon October 6, 2017

“Misdiagnosed: The search for Dr. House” by Nika C. Beamon is a story about a young, successful, African-American woman who by her mid-20s/early-30s was falling apart on the inside, and no doctor could tell her exactly what was wrong with her.

Each doctor seemed to not want to state that they had no idea what was going on, instead they continually misdiagnosed Nika until she finally lead a search to find someone who could tell her what was going on.

The book is a mildly paced, interesting, and often times heart-breaking tale. It goes through highs and lows battling one diagnosis after another with different medications, treatments, and surgeries. Beamon does a great job at leading the reader on the chase with her to find out what is going on and doesn’t reveal too much too soon.

A couple issues I had was: the time jumps, they seemed to not be too coherent as to when exactly things were happening as we fast-forward through some major events in her life. Like one minute we are with Bryce in Harlem with a near-death scare to a book signing some odd time forward that was never clearly defined. However, it doesn’t really detract from the book as a whole, it was just mildly distracting trying to place ‘when’ we were.


I did enjoy reading about how her lovers helped her, and how they supported her and her battles with one of their infidelity. I also enjoyed figuring out what was going on with Beamon. I shared her frustration at a boyfriend who was unfaithful, her struggles with wait times, finances, and wasting time.


Beamon does a good job at describing the utter agony, frustration, and day-to-day struggle of her search for the answer. Misdiagnosed… is a great read and comes with great resources so that others will not fall victim to being misdiagnosed.

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No Day But Today

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Author Napolean Hill says “A goal is a dream with a deadline.” I believe that’s true. Instead of saying someday I will, I’ve decided to set goals to reach for the next 90 days. Why? The alternative would allow my fear of relapse to keep me from moving my life forward. And, it would enable the fact that I have an autoimmune disease (igg4-rd)to limit my future. No way!

1. Set a publication date for my book, Chronic (formerly named Healed) in March (Autoimmune awareness month). I’ve submitted to publishers and gotten notes that ‘memoirs by people who aren’t famous don’t sell. Even one copy is a victory to me. I will release it so that all people who live with an autoimmune disease, relapsing disease or chronic illness/pain will know that it is possible cope with a medical ailment that cannot be cured.
2. Register for a course to complete another degree I started a long time ago (pave the way for a new career as a teacher/professor or whatever I chose). I’m certain not to old to learn. I read and share newly acquired knowledge every day at my present job.
3. Plan a trip that’s more tha a week long with my family (time is precious and want to spend it with those I love.)
4. Begin the adoption application process (I’ve always wanted to be a mom and this maybe the only way for me to do so)
5. I’ll stand on my own two feet and take a long walk without the assistance of a cane for the first time in two years. January 15th is the end of my chosen 90 day period. All of my restorative procedure will be complete.

When I finished my list the lyrics to one of my favorite songs from the musical, “Rent,” popped into my head:

“There’s only now, there’s only here
Give in to love or live in fear
No other path, No other way
No day but today”


There is no way I can justify not accomplishing my goals. I prayed for this respite for decades. I had procedures, saw doctors, and took pills to get to this point. I fought for the chance to succeed, to thrive, to live my dreams. And, I will. No Excuses.


#spoonies #disability #invisibleillness #autoimmunedisease #igg4 #aarda #chronicillness #chronicpain #noexcuses #rent #NapoleanHill #stephenhawking