A Good Interruption

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I have a nightly ritual. I take my hair out of its ponytail when I get home from work. The hair is usually wet so I brush it until it’s smooth and dry. There’s no makeup to remove because I never wear any. I was natural before it was trendy. Then I change my clothes and make some dinner. Tonight, my ritual was interrupted for a good reason. I got a message that I’d received another, new 5 Star Review For Misdiagnosed: The Search for Dr. House

“It was an intense, emotional, and most of the time downright terrifying ride, but Nika always had her family right by her side.

All in all, I enjoyed the ride and am very grateful to Ms. Beamon for sharing it with us.”

https://alicesbookreviews.tumblr.com/

#HouseMD #NaturalBeauty #memoir #Invisibleillness #igg4 #autoimmunedisease #chronicillness #chronicpain #misdiagnosis

Full Review:

Misdignosed is a chronicle of Nika Beamon’s journey though the medical system, having been given multiple diagnosis-es, describing the symptoms, but not the cause. It covers her 20 years of bouncing between doctors and therapists, trying to figure out what she actually had, and all the stresses it added to her personal life. Beamons’s story can be found to be exceptionally relatable to many who struggle with a disease that is still unknown to them, even as base as depression. It is also a strong criticism of today’s medical system, where many are simply forgotten about or blatantly neglected.

I found that the stories are told in the style of House M.D., in that she was finally diagnosed correctly after having been looked at as a whole, and not in pieces, as happens too often in our current medical system.

The mystery began with a series of 104 degree fevers, joint-pain, and intense fatigue during her college and ended twenty years later with a lady named Doctor Reed. It was an intense, emotional, and most of the time downright terrifying ride, but Nika always had her family right by her side.

All in all, I enjoyed the ride and am very grateful to Ms. Beamon for sharing it with us. I wholeheartedly recommend Misdiagnosed.

 

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A Career To Remember

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I was in the middle of doing a cut sheet for an insert on Charles Schumer’s fight to restore mandatory sleep apnea testing for Metro-North engineers and writing and editing Vo Sot Vo about the British model who claimed to be kidnapped when the camera crew arrived. I’d reluctantly agreed to take a photo and provide an on camera quote as part of my company’s celebration of my 20 year anniversary.

I’d chosen a job behind the scenes decades ago, in part, because I can’t stand the sound of my voice on tape and doing hair and makeup aren’t things I enjoy doing. Yet, I flat ironed my hair for the occasion. Unfortunately, the moisture in the air took out the curls and made it puff up.

I placed my cane behind the assignment desk and waited for instructions. When the lights were turned on and the camera was pointing towards me I almost decided to cancel.

“How does it feel knowing you’ve been here for 20 years?” The producer asked.

I paused and and replied, “Do you really want me to answer that?”

“I can ask you something else,” the coordinator said. “What’s the best part of spending 20 years with the company?”

I responded as I looked around my corner of the newsroom at all the faces. “I’ll answer.”

I thought for a second and said, “The years have flown by. It’s hard to believe it’s been 20 years; most of my adult working life. I’ve had steady work for the last two decades covering world events. I’ve written about fires, births, deaths, wars, trials and elections. I’ve learned about budgets, foreign affairs and health breakthroughs. But, the job isn’t what I’ll remember most; the people are unforgettable. The people make the long hours, the irritation, and the writer’s cramps worth it. I didn’t intend to be in the news business this long now I don’t know what I’ll do next.”

#tvnews #journalism #disability #chronicillness #chronicpain #autoimmunedisease #nomakeup #anniversary